Ethics in the pediatric patient carrying a no Transmisible Chronic Disease

Abstract

An important dilemma in our pediatric medical practice is the atention of the child carrying a no Transmisible Chronic Disease, permanently affecting the child and limiting several aspects of his life, to which is added, in many cases, a somber and sometimes fatal prognosis. All of these facts strike on the family and on the environment where they grow up, generating many questions among parents and relatives, and deforming familiar dynamics. That is why all the members of their families have to find in the health care workers not only medical attention, but also a great respect and comprenhesion contributing to diminish the stigmatization generated by these diseases.
We analize ethic problems that involve not only the doctor but the family, situations in which there have to be taken desicions in which, for obvious age reasons, the autonomy right not always can be excerted by the pediatric patient; and the informed consent is needed; all of this without forgeting that, even if it is sometimes very difficult, it is unavoidable to direct our performance fy the principles of the pediatric doctor´s etics in general sense, combining it with the ethics of the child and his family because it is a social right in our system and an ethic principle of our medicine that, as Fidel said in the concept of Revolution “We should never violate”